Start date: 4th Sep 2014
End date: 4th Sep 2014
Duration: 1 hour and 30 minutes
ISCoS Workshop Topic: International Spinal Cord Injury Research Collaborations: Perspectives from Consumers and Researchers; Actions Required to Advance Clinical Research
Thursday, September 4, 2014
7:30 am-9:00 am
Berlin/COP Room, MECC, Maastricht, The Netherlands
This workshop is geared towards Spinal Cord Injury consumers, researchers and funders. All are welcome.
International collaborations in clinical research are critical to advance spinal cord injury research and care. Benefits of international collaborations include increased participant numbers, efficiency in resourcing, shared learnings of best practices and access to innovative new therapies.
This will be an interactive workshop session where attendees will hear results from an on-line survey of over 600 consumers about:
- Perceived barriers and facilitators consumers experience with trial participation.
- Suggested initiatives that could facilitate international collaborations.
- How to improve clinical trial design to enhance consumer participation.
- How those results can be turned into an action plan for adoption in international collaborations.
Presentations & Interactive Discussions:
Results from the Consumer Survey
Presented by: Kim Anderson-Erisman, Miami Project to Cure Paralysis.
Recruitment of Consumers:Lessons Learned and Action Planning
Facilitated by: Kent Bassett-Spiers, Ontario Neurotrauma Foundation.
Panellists include: Kim Anderson-Erisman, Miami Project to Cure Paralysis; Jocelyn Tomkinson, Rick Hansen Institute, International Collaboration on Repair Discoveries; Tara Jeji, Ontario Neurotrauma Foundation; Corinne Jeanmaire, European Spinal Cord Injury Federation; and others to be confirmed.
The Next Steps: Summary of Key Actions and Progress on the Researchers Survey of Barriers and Facilitators to International CollaborationsPresented by: Vanessa Noonan, Rick Hansen Institute; Doug Brown, International Spinal Cord Society; and Verna Smith, Institute for Safety, Compensation and Recovery Research.